to retrain, reeducate, and rehabilitate a patient who has already incurred a disability is This is a topic that many people are looking for. bluevelvetrestaurant.com is a channel providing useful information about learning, life, digital marketing and online courses …. it will help you have an overview and solid multi-faceted knowledge . Today, bluevelvetrestaurant.com would like to introduce to you Disability Coping With Limitations. Following along are instructions in the video below:
Purple ella here today. I want to talk to you about accepting limitations that you you have experienced as a result of your disability. So the first thing that i like i need to discuss when im talking about limitations that you have experienced as a result of your disability are the two different models that we tend to look at when we look at disability limitation the first model is the social model of disability.
This says that we are disabled not by our conditions. But by society for example if we dont put wheelchair ramps up in places. Where people who use wheelchairs need access they are not disabled by being in a wheelchair they are disabled by the lack of wheelchair ramp.
If it is not possible for me to speak to a doctor on a video chat rather than on a phone conversation then i am not disabled by my autism and inability to talk on the phone. I am disabled by the lack of provision for me to do things the way that i would be comfortable and capable of doing them that is the social model of disability i made a whole video about the social model of disability with the lovely roz and im going to put that above in a card now and then there is the medical model of disability. Which is kind of a little bit more straightforward i guess that we are disabled by our conditions.
I cannot walk for more than 20 minutes. Because i get fatigue and joint pain if i do that that would be the medical model of disability personally i feel like mostly we are limited by the social model of disability. I feel like there are many things that i would be capable of doing if it werent for the way that society was structured and then that there is a small element the medical model of disability.
Because there are some things that i simply cannot do because of overwhelming fatigue. And there would be no amount of society accommodations that would make that possible because there are things that i cant do because of my conditions that ive really struggled to find a workaround for and im not sure that there is a workaround for but maybe im wrong i dont know those are my thoughts. So i am limited physically because of my hypermobile ulas danlos syndrome.
And im also limited because i diverse specifically on the autistic spectrum. I experience joint pain and fatigue and gastrointestinal difficulties and those things prevent me from partaking in lots of aspects of life that i would like to partake in they prevent me from participating in more physical activities they prevent me from socializing or in fact doing anything in the evenings. Because by then im too fatigued they prevent me from a lot of physical things that i would like to do climbing hanging from a trapeze.
Something i used to be a fan of running. I havent run in five years. Id love to run with my children.
I am limited by my physical difficulties in those ways. I am limited because of my autism in that too much social contact. Whether thats in a work professional or personal capacity causes me to become overloaded and anxious so i have to limit the amount of stimulus that i am exposed to and additionally.
My sensory processing issues prevent me from going to busy noisy loud. Places. They prevent me from being able to reliably eat because food texture.
Changes. And my experience of that texture. Changes and one day.
I can eat something and the next day. I cant the anxiety that i experienced as a result of both hdds and autism prevents me from doing things like staying away overnight. Without my support team.
I cannot do this because i experienced crippling anxiety and panic attacks. Every time that i try to do it. So i am limited.
I am limited by societal structure. I am limited by my physical conditions and this is something that i really need to find a way to make peace with i have been aware of these limitations. I guess for at least the last eight years and prior to that i was experiencing many of these limitations because both the conditions that i have are actually conditions that i was born with but they have gotten increasingly worse as ive got older and during the time that ive been more aware of my limitations.
Ive really struggled with a variety of emotions around this situation. I really want to be someone who remains positive and gets on with my life regardless of my limitations and can cope with the disappointment of the things that i cannot do and can be just grateful and happy with the things that i can do and finds a way to experience the world with the limitations that i have in a way that is satisfying to me and is positive all the time. But i dont think anybodys really like that and i definitely am not there are times that i rail against my disabilities.
I curse the world for being in the situation that i mean i cry i scream i shout i sink into depression. Its really hard to remain. Upbeat and to continue being me.
Whilst. Experiencing debilitating gastrointestinal. Symptoms or being so tired that i cant get up from the sofa.
When ive got a million things that i want to do so i wanted to make this video to talk about that partly for personal therapy. The joy of making videos of personal therapy. And partly to come up with some solutions that might benefit us all i think adjusting to disability.
It goes through some stages in a similar way to the way that we describe bereavement. I think the first emotion that i had around this was shock even though. I was born with the conditions that i was born with i wasnt aware that i had those conditions so once i was diagnosed firstly with autism and secondly with h eds.
I had a period of being like oh i have this thing. Its never gonna go away. This is my life now and that was a shock.
And that was the first stage. The second stage and a stage that i keep returning to is denial. I go through many many periods of strong denial of the situation that im in are feeling that if i just pushed a little bit harder tried a little bit more worked a little bit or i could overcome my disabilities.
And they wouldnt hinder my life anymore perhaps if i just readjust it this a certain way id be able to be just like everybody else only with crutches. I dont know denial. Its one that i sit with quite a lot another stage is anger and depression feeling like hard done to like why me why cant i be the person that is just has a normal body that just functions like everybody else my age.
Oh. I cant live like this its too hard. Its too challenging those feelings.
I get hit with those feelings. When im at my worst. When i feel really unwell or when ive just had a massive meltdown and really humiliated myself.
Thats when i hit that place and then finally adjustment and acceptance and this is the place that i want to spend more time in that im currently spending in i think its because ive always had big ambitions when i was younger. I basically wanted to be madonna and then i went through a stage of thinking that id like to be an andrew lloyd webber musical and then i wanted to be a circus artist and i worked as a circus artist and i wanted to travel i wanted more from life than your average typical life thats always where my heads been at and then ive been given this hand. Which is by no means the worst hand.
I have a lot thats positive in my life. But ive been given this hand that is a hand that constantly reminds myself that its there when i experience the symptoms i experience. I cant forget about my disabilities.
Because they affect me every day and all of those dreams and all of those aspirations feel impossible and have felt impossible for a significant amount of time now and in addition. Theres the life that i want to give to my children in which i run with my children in which i can play a game of catch with my children without becoming completely exhausted play hide and seek. Im im naturally quite a physical person and theres that and then theres the additional stuff of the impact that my autism might have on my children like i cant always be happy and cheery.
But then who i guess so theres the like disappointment and guilt about the life that id like to entirely offer to my children and the life that im capable of offering to my children as a result of the constraints of my disabilities. So how do i find acceptance with that i think at this point. Its worth mentioning that one of the hurdles to finding acceptance as a disabled person is the hero disabled narrative.
I made a video about this some time ago which ill put as a card above now. But basically the hero narrative is where you see a picture of a disabled person on facebook. And it says this person has all these disabilities and yet they were able to climb everest.
How inspirational is that and yet obviously. It is inspirational when someone who has disabilities overcomes those disabilities to achieve something that you wouldnt have thought was possible for them and thats brilliant. But when we see this narrative as a disabled person it makes us feel like unless.
We are heroes. Overcoming our limitations and climbing everest were basically failing at life and that makes it really hard to accept where were at now because it also presents the narrative that if we work hard enough we can overcome our disabilities and achieve what looked like unachievable things. Which isnt always the case and so we add to our pile of things we have to deal with guilt and a sense of failure.
We have to be aware that all disabled people are different all disabilities are different and all life circumstances are different and the hero narrative kind of indicates that anybody who wants to can try hard enough and overcome. And thats just not the case and if we can let go of that and start to see disabled people as just people. I think that will be a good first step in terms of accepting those limitations.
So these are my tips for finding acceptance and peace as a disabled person who is struggling with the limitations. Thats imposed on your life make lifestyle changes this can look like using mobility aids to enable you to do the things you need and want to do setting time limits for activities. So if you know that you can only socialize for an hour.
Before youll experience fatigue or pain or overload. Then set that limit that clear with whoever. It is that you have a social plan with and stick to that limit find workarounds to manage activities that you might not be able to manage ordinarily for example using a stool to sit down on whilst you cook or if holding up a book is gonna give you restrain and pain buying a book stand.
So that you can put it there and rest your arms. There are a bunch of different workarounds to the things we might want to do in life. And its worth investigating those to find out what might help support you to take part in the activities that you want to take part in if youre really fortunate you could work with an occupational therapist to adapt your life in this way connect with your community with many disabilities.
There is a community that you can find off people who are experiencing the same disabilities. As you you can connect with them in real life or on the internet via forums or facebook. Groups or twitter or social.
Support groups. And sometimes meeting. Other people who are dealing with the same challenges as you and experiencing the same symptoms.
As you can be incredibly reassuring. Affirming and can help you find peace with the situation that youre in because youre not alone. Not everybody is out there living their best life.
There are other people experiencing the things that youre experiencing and that can create this incredible sense of solidarity and they might also be able to offer you advice and tips for how to move forward with the things that you would like to do with that specific disability set boundaries and ask for accommodations. Which prioritize your health. You need friends who understand when you need to cancel or who could do a video chat when you cant quite leave the house ask for reasonable adjustments could you do that meeting via zoom or skype.
Or facetime rather than going there in person. If you want to go to an activity. But driving to the activity and being at the activity would be too much could somebody give you a lift to make that more possible know your limits.
And dont be persuaded to push past them be okay with setting the boundary of what you need what your limits are and how you can participate in things. And dont feel guilty or pressure or whatever. It is to push past those i hope you found this video.
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